|
A Message from the Web
Site Author
What you
must know right now (to be a wise health-care consumer)!
You are not alone! This applies to
any possible condition you want information about in case it affects
you—and you've been left hanging with a "possible" problem, or told
"let's check in about six months." Do not wait. You deserve more than
one opinion. Not one physician would take that advice for anyone s/he
loved, nor for him or herself. So, don't you, either.
There are 1000s of
women, RNs, and physicians who care about you. Yes—you must find them. You
must also build your confidence, based on what you are learning, so you can
be "open" enough to share with your chosen team (see below) "where" you are
emotionally, at all times. If you don't trust them, or are afraid, you must
tell them. You must learn to speak up and be persistent. No, its not fair
when one is frightened and ill, but this is YOUR life. I am here to help
you, and I have others who will, too. Use us!
NEVER
FORGET: Patients have the best outcomes when they leave
their places of residence for diagnosis and treatment, and also use oncology surgeons who have performed
the greatest number of operations each patient requires ! So, ask questions and reach out! The Team approach to healthcare is the
best defense against litigation.
I know its difficult to confront
authority figures, especially those whom you are thinking of trusting with
your life, but you won't be doing that.
You will be in charge of your team
and inviting members you want on the team. Its time to take charge of
your healthcare by finding the most competent, caring team that you can
find.
Be "open" about your fears, or
feelings—you may fax a letter or mail one to whomever it is.
Use your computer, and fax doctors after you see them to "clarify our
visit," because that goes in your case file.
The busiest
and best clinicians (specialists) will give you their e-mail addresses.
Yes, they are busy, but as they help you, you will become more aware of
their time, and your team will develop into a group of physicians,
friends, family, whomever you desire, caring about each other with
understanding and an open tolerance for one another.
The majority of women do not have
accurate information about their healthcare, and certainly not
about breastcancer, nor have we been told the truth
about it. We have been the object of grand marketing campaigns to convince
us that in order to detect breastcancer early we must stay within a set
package of information, volunteer, run races, be called "Survivor" if
treated for breastcancer and lived through it, believe that if the BC
doesn't come back in 3-5 years they are "In Remission," and raise funds.
First, there are no objective,
clinical analyses to prove breastcancer is gone, or "in remission." In
fact, BC unlike other cancers is multi-centric by definition, and women
must know that, remain vigilant, and work closely with their
oncologists, for the rest of their lives. Its a new journey, and one of
the things in life over which we have little control. But,
we are learning more each day about these not-so-foreign invaders, as
we once thought.
That is
why you must follow experts' advice, and seek the best
brains you can get to, no matter how much you have to
put forth an effort.
Others
will help you.
Women who've had BC should be in
chariots with their caregivers running along side of the grand vehicles!
Some women have questioned the
breastcancer advise of the past few decades because of their own education,
experience, or following their gut instincts, but now is the time to think
out of "the box," ask questions, seek the truth, and decide for yourself the
direction you want to follow, but always remember, you are in charge of our
healthcare, and need to build a team of trustworthy experts you have
selected, and will view you as head of your team (more on this later in the
site). We've noticed that there is little or nothing based in PREVENTION
(don't fret, the oncology seminars are similar—those of us "in Prevention"
are often the only ones not at the lavish evening banquets!
Contact information is on the opening URL,
known as Home.
Stedman's Online
Medical Dictionary may be a help to you.
continued:
Myths and Madness
Reviewed:
Sunday, December 10, 2006 |